Bethany

Bethany
Bethany with her NG feeding tube. August 2013

Tuesday, February 18, 2014

Allergy update

We have been doing a modified GAPS diet for Bethany since December. It has been going well, it's a lot of work and a lot of prep on Sundays for the week. She made very slow progress but I think her gut is finally healing. One thing she really likes is these nut bars, she calls them cookies and that works for me.
They are really simple. 
2 cups of nuts or seeds (we use cashew, almond and sunflower seeds)
1/2 cup oil (we use sunflower)
2-4 eggs
Mix with the food processor to the desired consistency and bake at 350 for 15 minutes.


Bethany had a follow up appointment with the allergist yesterday. Her skin testing was unremarkable, meaning she was negative for milk, peanuts, walnuts and wheat. All foods we have been avoiding and will continue to avoid. Based on her past history with milk the allergist gave Bethany a diagnosis of FPIES - funny name huh?
It stands for Food Protein Induced Enterocolitis Syndrome. Basically, it's a food allergy that is not IgG mediated, meaning it doesn't cause her throat to swell or give her hives. It can however be a life threatening condition because the vomiting and diarrhea that go along with it can be so severe and cause such rapid dehydration that it can cause shock. Therefore, if we want to go forward with a food tolerance test we would have to be admitted to an inpatient unit so we can deal with the symptoms should they occur. A fair number of kids outgrow FPIES by age 3.


And here's a cute story just because
The girls have been battling a runny nose and we are always telling them "don't pick your nose". Tonight I picked the girls up from my parents, as I'm buckling Bethany into the car seat she says "baked nose" so I say to her "I don't know what that means" and just as clear as anything she says "don't pick your nose" I burst out laughing. It's really the little moments like that that make life.